Find your way around the Internet when sick...

Are you lost? Think you have a rare tropical disease? Which site do you trust?

The Aussie Government launched this initiative:

The Fifty-first World Health Assembly (Resolution WHA51.9, May 1998) requested the Director-General of WHO to develop a guide on medical products and the Internet. The guide was intended to serve as a model for Member States to adapt into locally meaningful advice for Internet users in order to help them to obtain reliable, independent and comparable information on medicinal products. The guide in this booklet has been prepared to meet the Health Assembly request. It has been developed in consultation with drug regulatory authorities, drug information experts, consumer organizations, and the pharmaceutical industry. It is a model guide, designed to be translated into national languages and modified as the local situation may require.

WHO would be grateful to receive any comments on experience gained from the practical use of the guide which would help in developing it further

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At last. Someone who isn't just indexing all the bullshit diagnoses out there - and someone really trying to help the internet junkies properly embrace the cyberchondria!

It might be old. At least they're thinking right.

Medical Quackery - Cyberchondriacs

Stumbled across an old, but interesting post. Excerpt below:

"Experts warn there is a great deal of false and misleading information on the Internet. That’s true – I learned the hard way that eating a bucket of chocolate pudding doesn’t alleviate a headache.

But, for me, the outright quackery was far less damaging than the cold, hard, accurate facts. There is no more devastating statistic than a Survival Rate. That number rattles around your brain like it’s the solution to an equation that could save your life. You massage it, you toy with it… “If 75.2% survive, that means 24.8% don’t… and if 24.8% don’t that means almost 1 in 4…” There’s no better, darker way to learn math."

All to often in practice you get patients who come in and tell YOU what they have. They Google'd it and now know that they have some bacterial infection, or rare intestinal disease or worse. They want "augmentin" or something else they read up about... You smile as a doctor, say you just need to check, only to find out that they have a simple cold, or a viral gastro and nothing more..

Just try and Google the symptoms for Inflammatory bowel disease and I bet most of you will think that you have it...


The lesson is this. We study for more than 6 years to DISTINGUISH symptoms and diseases. Anybody can read medical textbooks or google symptoms and will think they have the answer, but medical school teaches you how to work out what is a headache and what is a brain tumour.

Clinical examination is important. You'd be suprised to know what I can diagnose the way you walk into the room, or by simply looking at the back of your eye (and you would laugh at the amount of information we get out of a touch-your-nose-then-my-finger neurological examination).

Ah... sometimes I miss clinical medicine... but only sometimes...

NetCare in an organ transplant scam.

Yikes. Click on the image to enlarge.

Marketing a Journal Article...

We received this mail a while ago from Dan Jeffers...

While reviewing blogs and Web sites that discuss blood disorders, I noticed that yours seems to be well-read and well-informed. Your readers may be interested in the recent clinical practice guidelines for von Willebrand Disease (VWD) offered by the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health. These are the first clinical guidelines in the United States for the diagnosis and management of von Willebrand Disease (VWD), the most common inherited bleeding disorder. The guidelines include recommendations on screening, diagnosis, disease management, and directions for future research. An extensive article on the guidelines is published online Feb. 29 in the journal Haemophilia.

“These are the first guidelines on von Willebrand Disease published in the United States and we are pleased to offer clinicians science-based recommendations in the evaluation and treatment of patients,” said NHLBI Director Elizabeth G. Nabel, M.D. “The disease can be difficult to diagnose, especially in women of child-bearing age and in children, and the danger of excessive bleeding is often under-recognized.”

The guidelines can be found at http://www.nhlbi.nih.gov/guidelines/vwd/index.htm, and are available for purchase or download.

We hope that you will reach out to your audience by posting a link and/or commenting about the recent guidelines. Thanks for helping us spread the word.

Regards,
Dan Jeffers
Internet Marketing Specialist for
National Heart, Lung, and Blood Institute

What interests me most is not the guidelines for Von Willebrands disease (for medical personel can be found here), it's the fact that medical marketing seems to have taken a new turn.

Before, if a new guideline was published, it could be found in the latest journals like the NEMJ, BMJ, AMJ, SAMJ, CME (there are many (x 100) more) and you would get to know about it via word of mouth. Usually a collegue in the specific field of medicine would have either seen it in his journal, heard about it at a conference, or a drug rep would spread the word. Mostly reputable sources.

It is interesting, that in this new landscape of everything being accessible online (don't get me into the exhorbitant prices you pay to access journals) that this seems to be a new way to market. Get it on Blogs, have the medical Bloggers promote it. It's definately a cheaper and perhaps more far reaching marketing tool. But do you always trust the bloggers information?

This at least comes from a reputable site, so I know the info is good. But in the ever increasing world wide web, where a ton of stuff is factitious (see earlier post about men having babies) and where is it getting harder to distinguish legitimate medical sites from the hocus-pocus out there - I am sceptical about the marketing means...

I don't know...

Jury is out for me...

I'm still trying to decide if I like this type of marketing or if it going to create more headaches in the long run with the large, and sometimes painful, website and information verification process.

GUEST POST: Trusting your Doctor – Is it the Right Treatment?

Welcome to All Scrubbed Up's 4th guest blogger... Sarah Scrafford! Enjoy her views on the patient-doctor relationships. We think this one may draw some comments...

There are some people who treat their doctors like Gods – they think they can do no wrong, that they can cure any malaise, and that they have their best interests at heart. And then there are others who are extremely reluctant to trust anyone connected to the medical field, who move from doctor to doctor in search of the perfect one they can trust but never find one at all, and who generally prefer to treat themselves unless it’s a life-threatening situation. In my opinion, neither extreme is advisable – while you must trust your doctor to do the best for you, it’s also prudent to exercise caution and do a bit of research before you throw yourself at the complete mercy of a total stranger.

We hear horror stories of medical malpractices that occur because of both negligence and/or incompetency; the victims of these tragedies escape with no lasting damage if they’re lucky, but if they’re not, they could end up with chronic conditions, or worse, die. Medical lawsuits are extremely complicated affairs that end up becoming costly and difficult to prove, which is why it’s best to be prepared and do your homework before going to a doctor to seek treatment:

* Talk to other patients: Before you commit yourself to going under the knife of a particular surgeon, talk to his or her other patients so that you get proper feedback from the right sources. Long time patients are your best bet – they’re the ones who know exactly how competent and how trustworthy your soon-to-be physician is.

* Check the Internet: Some doctors have a web presence, but then again, you can’t believe their own publicity. Run a search to see if people have blogged about their efficiencies or inefficiencies – this being the age of free and available information, most people are not hesitant to air their views from a public soapbox, especially when the medium is as vast and diverse as the World Wide Web.

* Talk to your doctor itself: Some doctors are open to honest communication, and if you’re a good judge of character, you’ll know if you’re in good hands or not.

* Use relatives or close friends in the medical community: People who have close connections to the medical industry are usually in the inner loop regarding doctors and their methods of treatment. If you know someone in the medical community, don’t hesitate to pick their brains and seek their opinion.

* Bedside manner is not everything: Don’t be fooled by the bedside manner of doctors – that’s all there is to some of them. Style over substance never works, more so when it’s a question of your life. So take what doctors say with a pinch of salt, and double check your facts if you want to life a long and healthy life.

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This article is contributed by Sarah Scrafford, who regularly writes on the topic of Radiology Technician Schools. She invites your questions, comments and freelancing job inquiries at her email address: sarah.scrafford25@gmail.com.